Leukodystrophy Related Dementia

Leukodystrophy is a group of genetic diseases that affect children. Leukodystrophy results from a problem with myelin, the covering for nerves that makes up the white matter in the brain. Signs and symptoms vary with the particular type of leukodystrophy, but most types are characterized by gradual decline of various abilities, such as limited speech and movement in a child who previously seemed well.

The treatments and outcomes for the disease depends on the type of leukodystrophy. Review the resources below to learn more about leukodystrophy and related dementia.


Hunter's Hope Foundation

Source: Hunter's Hope Foundation
Description: This foundation's website seeks to raise public awareness and funding for research into Krabbe leukodystrophy and other leukodystrophies. Geared towards families who have children with the disease, the site offers education, support, and information on current research and personal experiences.

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United Leukodystrophy Foundation

Source: United Leukodystrophy Foundation
Description: This website provides easy-to-read information on leukodystrophy in its various forms. With membership, the site offers a quarterly newsletter and contact with a network of other families and individuals involved in the care of loved ones with leukodystrophy.

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Leukodystrophy Information Page

Source: National Institute of Neurological Disorders and Stroke
Description: This web page discusses leukodystrophy and its treatment. It also provides links to current research and supporting organizations.

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